Data and Statistics on Congenital Heart Defects

By | August 22, 2019

Children with Heart Conditions Have Special Healthcare Needs
A study from the Centers for Disease Control and Prevention (CDC) found that 1 in 77 U.S. children reportedly had a current heart condition in 2016.
(Published: September 27, 2018)

Study Finds Infant Cardiac Deaths Have Declined in States that Mandate Screening for Critical Congenital Heart Disease
The Journal of the American Medical Association has published a study reporting a more than 33% decline in infant deaths from critical congenital heart disease (CCHD) in eight states that mandated screening for CCHD using pulse oximetry compared to states without screening policies
(Published: December 5, 2017)

Estimating the Number of People with Congenital Heart Defects Living in the United States
The journal Circulation has published a study that estimates about 1 million children and 1.4 million adults in the United States were living with a congenital heart defect (CHD) in 2010.
(Published: July 5, 2016)

Newborn Screening for Critical Congenital Heart Defects Now Common Throughout the United States
In a report in the journal, Pediatrics, CDC researchers and partners reviewed the overall effects of critical CHD screening, including costs and health outcomes (cost-effectiveness) of performing screenings, challenges at the state level for screening, and implementing screening in special settings
(Published: April 15, 2016)

Use of Special Education Services among Children with CHDs
CDC study findings in Pediatrics show that children with congenital heart defects (CHDs) received special education services more often than children without birth defects.
(Published: August 17, 2015)

Estimated Number of Infants Detected and Missed by Critical Congenital Heart Defect Screening
The journal Pediatrics has published a study estimating the number of infants with critical congenital heart defects(critical CHDs) potentially detected or missed through universal screening for critical CHDs using pulse oximetry.
(Published: May 11, 2015)

Diabetes before pregnancy and congenital heart defects
In a study published in the American Journal of Preventative Medicine, women with diabetes before pregnancy were about 4 times more likely to have a pregnancy affected by a congenital heart defect compared to women without diabetes.
(Published: February 2015)

Long Term Outcomes in Children with Congenital Heart Disease
In a study published in the Journal of Pediatrics, CDC researchers found that children with CHD are more likely to report worse health overall, to need more healthcare services, and to have other health conditions, compared to children without CHD.
(Published: January 2015)

Infant Death Due to Heart Defects
Congenital heart defects are conditions present at birth that can affect the way the heart works. They can cause lifelong disability or death. They are the most common type of birth defect, affecting nearly 40,000 births in the United States each year.
(Published: July 9, 2014)

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